Sep 10, 2021

California Genetic Information Privacy Act Heads to Governor

California may soon have a law requiring direct-to-consumer genetic testing companies to provide information about the collection, use, and disclosure of people’s genetic data.

Senate Bill 41, the Genetic Information Privacy Act, passed the California Senate on concurrence 38-0 on Thursday and will now be sent to Gov. Gavin Newsom’s (D) desk. The bill passed the state Assembly unanimously on Wednesday.

The bill, was introduced by state Sen. Tom Umberg (D) and co-authored by Assemblymember Buffy Wicks (D).

The bill specifies, “the California Consumer Privacy Act of 2018, provides various protections to a consumer with respect to a business that collects the consumer’s personal information, including biometric information such as the consumer’s deoxyribonucleic acid (DNA). The act requires a business that collects a consumer’s personal information to, at or before the point of collection, inform the consumer as to the categories of personal information to be collected and the purposes for which the information will be used, and grants to a consumer the right to opt-out of the sale of the consumer’s personal information by the business to a third party.”

The text of the bill may be found at:

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